Resources
We are dedicated to helping you get the support and information you need to learn about your disease and treatment options, prepare for transplant and thrive after transplant. The information and resources here will help you navigate your transplant journey.
Patient Resource Packet
We’ve created an easy-to-use packet with information for patients and their families, including:
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What is Sickle Cell Disease?
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Free resources for sickle cell warriors
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Sickle Cell Disease and Transplant
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How your friends and family could be the cure for sickle cell warriors
Patient Navigators
Not sure where to go with questions about your transplant journey or who to ask? We're here to guide you and your loved ones from diagnosis, through recovery. We'll listen and help you find answers. All our programs and resources are free.
Peer Connect
Our Peer Connect program can connect you with a trained volunteer who’s been there. No matter where you are in the transplant process, past recipients and caregivers like you are available to talk by phone or email, to listen and share tips based on their own experience.
Patient Counselors
Individual counseling is an opportunity for warriors and their caregivers to get support during difficult times no matter where you are in the treatment process. It involves developing a two-way professional relationship between a licensed counselor and you. The counselor can help you to identify and resolve personal, social and emotional problems related to illness and BMT. The counselor can also help you improve your coping skills and quality of life.
Financial Assistance
The Financial Assistance Program is designed to help warriors overcome financial barriers to transplant. Be The Match offers grants to help qualified patients cover costs pre and post-transplant including, but not limited to: family typing, dental work, housing, food, gas and copays. Our patient navigators can help you understand if you qualify.
Clinical Trials
For many people with blood cancers or blood disorders, treatment through clinical trials provides hope and a potential cure. But they’re not always easy to find or understand. We can help you or your loved one find and join clinical trials.
Patient Advocacy
Advocacy is critically important to protect access and expand coverage for patients needing a life-saving stem cell transplant. The Government Affairs Team is dedicated to advancing our mission through legislative and policy action. We advocate to maintain and improve patient access to care. We cannot do this alone. We need your help and by joining our mission as an advocate, together, we can save lives.
Sickle Cell Advocacy Organizations
Be The Match is proud to partner with these organizations who support patients with SCD.
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ASH
The American Society of Hematology (ASH) leads the world in promoting and supporting clinical and scientific hematology research through its many innovative award programs, meetings, publications and advocacy efforts.
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My 3 Sicklers
MTS Sickle Cell Foundation aims to increase the public’s awareness of sickle cell anemia. The organization will support awareness, education and research pertaining to sickle cell anemia as well as provide support to families affected by this life-threatening disease regardless of gender, creed or ethnicity.
SC3
The Sickle Cell Community Consortium is a nonprofit that aims to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers.
SCDAA
SCDAA Partners with The Pain Community to Support the Sickle Cell Community by Providing Comprehensive Integrative Pain Management Educational Information. Sickle Cell Disease Association of America, Inc.
STAR
The Sickle Cell Transplant Advocacy & Research Alliance (STAR) is a nonprofit founded by a group of pediatric hematology and stem cell doctors. It is the only large sickle cell disease organization with a focus solely on research to cure SCD. STAR provides both critical funding as well as an organized collaborative network for this important research.
Sickle Cell 101
Sickle Cell 101 (SC101) is a non-profit organization that specializes in sickle cell education for the patients, caregivers, health care professionals and other key stakeholders affected by sickle cell disease and trait globally.
Podcasts
Conversations and series discussing sickle cell patients, education, their journey and experiences.
Black Blood Heals
Black Blood Heals is an original podcast presented by Be The Match® in partnership with iHeartRadio. In this compelling monthly podcast series, we explore the stories of heroic Black donors who have saved lives and Black patients in need of life-saving stem cell and bone marrow transplants. Hear from Black doctors about disparities in health care affecting the Black community and learn how you can take action to save a life and change outcomes for patients battling blood cancer, sickle cell disease and other life-threatening diseases.
Sickle Cell 101
Talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education.