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Build Awareness. Empower Patients. Grow the Registry. Save Lives. 

 

Helping you stand strong

The Opportunity For A Cure

Learn more about what Sickle Cell Disease is, the options Be The Match provides for individuals with Sickle Cell Disease and how you can get involved to ensure all Sickle Cell Warriors have a second chance at life.

What you need to know about sickle cell disease - no matter who you are 

Get a first hand experience of what sickle cell disease is like. We cover the basics of sickle cell disease, daily life with SCD, and barriers faced by warriors and caregivers alike. Read more >

Spencer's Sickle Cell Journey

Spencer Brown was born with Sickle Cell Disease. From age 2 to 29, his life was unpredictable and punctuated by frequent bouts of excruciating pain, heavy doses of intravenous pain medication and lengthy hospital stays. Hear the story of his journey with sickle cell disease.

Breaking Down Sickle Cell Disease

Dr. Staci Arnold takes us through what sickle cell disease is, how it is inherited and some treatment options.

Clinical Trials for Sickle Cell

Anne DeSalvo, certified genetic counselor, walks us through clinical trials for sickle cell disease, patient rights and what you need to know if you're interested in exploring a clinical trial.

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The Sickle Cell Podcast

Talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education. Listen now >

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Black Blood Heals Podcast

Black Blood Heals is an original podcast presented by Be The Match in partnership with iHeartRadio. In this compelling monthly podcast series, we explore the stories of heroic Black donors who have saved lives and Black patients in need of life-saving stem cell and bone marrow transplants. Listen now >

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Sickle Cell Connect aims to connect sickle cell warriors with the resources and support to learn more about sickle cell disease and empower your treatment options. Created by Be The Match to build awareness of sickle cell disease, empower patients, grow the Be The Match registry and to save lives. To support you throughout your journey we have created a Warrior Package with useful free resources and tools.

 

Know that you’re not alone in this journey. Are you a Sickle Cell Warrior or a caregiver? Sign up to receive your Warrior Package today.

 
 
 

Other ways to help

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Join the registry

Request a swab kit and begin your own life-saving journey.

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Give

A gift of any size will help add more donors to the registry, help with uninsured patient costs and fund life-saving research.

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Host a donor drive

Help recruit donors to the registry by hosting an online or socially distanced drive.