SeriesBackground_2.jpg

Resources

We are dedicated to helping you get the support and information you need to learn about your disease and treatment options, prepare for transplant and thrive after transplant. The information and resources here will help you navigate your transplant journey. 

Patient Resource Packet

We’ve created an easy-to-use packet with information for patients and their families, including:  

  1. What is Sickle Cell Disease?

  2. Free resources for sickle cell warriors

  3. Sickle Cell Disease and Transplant

  4. How your friends and family could be the cure for sickle cell warriors

Download Resource Packet >

Patient Navigators

Not sure where to go with questions about your transplant journey or who to ask? We're here to guide you and your loved ones from diagnosis, through recovery. We'll listen and help you find answers. All our programs and resources are free. 

Connect with a Navigator >

Peer Connect

Our Peer Connect program can connect you with a trained volunteer who’s been there. No matter where you are in the transplant process, past recipients and caregivers like you are available to talk by phone or email, to listen and share tips based on their own experience.

Connect with your peers >

Patient Counselors 

Individual counseling is an opportunity for warriors and their caregivers to get support during difficult times no matter where you are in the treatment process. It involves developing a two-way professional relationship between a licensed counselor and you. The counselor can help you to identify and resolve personal, social and emotional problems related to illness and BMT. The counselor can also help you improve your coping skills and quality of life. 

Connect with a Counselor >

Financial Assistance

The Financial Assistance Program is designed to help warriors overcome financial barriers to transplant. Be The Match offers grants to help qualified patients cover costs pre and post-transplant including, but not limited to: family typing, dental work, housing, food, gas and copays. Our patient navigators can help you understand if you qualify. 

Connect with a Navigator >

Clinical Trials 

For many people with blood cancers or blood disorders, treatment through clinical trials provides hope and a potential cure. But they’re not always easy to find or understand. We can help you or your loved one find and join clinical trials. 

Connect to Clinical Trials >

Patient Advocacy 

Advocacy is critically important to protect access and expand coverage for patients needing a life-saving stem cell transplant. The Government Affairs Team is dedicated to advancing our mission through legislative and policy action. We advocate to maintain and improve patient access to care. We cannot do this alone. We need your help and by joining our mission as an advocate, together, we can save lives. 

Connect to Advocate >

Sickle Cell Advocacy Organizations 

Be The Match is proud to partner with these organizations who support patients with SCD. 

MTS Sickle Cell Foundation, Inc logo (1)

My 3 Sicklers

 MTS Sickle Cell Foundation aims to increase the public’s awareness of sickle cell anemia. The organization will support awareness, education and research pertaining to sickle cell anemia as well as provide support to families affected by this life-threatening disease regardless of gender, creed or ethnicity. 

SickleCell101.jpg

Sickle Cell 101

 Sickle Cell 101 (SC101) is a non-profit organization that specializes in sickle cell education for the patients, caregivers, health care professionals and other key stakeholders affected by sickle cell disease and trait globally. 

STAR

 The Sickle Cell Transplant Advocacy & Research Alliance (STAR) is a nonprofit founded by a group of pediatric hematology and stem cell doctors. It is the only large sickle cell disease organization with a focus solely on research to cure SCD. STAR provides both critical funding as well as an organized collaborative network for this important research. 

Sickle Cell Foundation of Minnesota logo

Sickle Cell Foundation of Minnesota

Sickle Cell Foundation of Minnesota's mission is to improve the quality of life for individuals and communities affected by sickle cell disease and sickle cell trait through education, advocacy, community empowerment, and equitable access to knowledgeable and compassionate care.

24094274_1755032124539085_42540466300151

SC3

 The Sickle Cell Community Consortium is a nonprofit that aims to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. 

Sickle Cell Disease Association of Illionois logo

SCDAI

Sickle Cell Disease Association of Illinois’ (SCDAI) primary mission is to enhance and increase the quality of life of individuals with sickle cell disease and their families. To effectively achieve this goal, SCDAI acts as an advocate for improved access to healthcare and services for sickle cell patients by educating and informing the community through outreach programs.