Resources
Get the support you need. Discover treatment options and find resources to help you navigate your transplant journey.
Patient resources packet
In partnership with the sickle cell disease (SCD) community, we’ve created an easy-to-use packet with information for patients and their families, including:
What is sickle cell disease? (PDF)
Transplant for sickle cell disease (PDF)
Free resources for sickle cell warriors (PDF)
How your friends and family could be the cure for sickle cell warriors (PDF)
Sickle cell transplant pediatric booklet (PDF)
Patient Navigator
Not sure where to go with questions about your transplant journey or who to ask? We’re here to guide you and your loved ones from diagnosis, through recovery. We’ll listen and help you find answers. All our programs and resources are free.
Peer Connect
Our Peer Connect program can connect you with a trained volunteer who’s been there. No matter where you are in the transplant process, past recipients and caregivers like you are available to talk by phone or email, to listen and share tips based on their own experience.
Patient and Caregiver Emotional Support (PACES)
PACES offers you and your loved ones free one-on-one support from a social worker. We can help you manage and cope with illness, treatment, the blood and marrow transplant (BMT) process and survivorship. This telephone-based support program offers flexible options for treatment-based support, including regular phone calls with a social worker, or one time calls to discuss options for support in your local community.
Financial assistance
The Financial Assistance Program is designed to help warriors overcome financial barriers to transplant. Be The Match offers grants to help qualified patients cover costs pre and post-transplant including, but not limited to: family typing, dental work, housing, food, gas and copays. Our patient navigators can help you understand if you qualify.
Fertility preservation grant
For eligible warriors, we may be able to provide financial assistance to preserve your fertility prior to transplant. We aim to help warriors build their family post-transplant.
Sickle cell disease fertility preservation grant (PDF)
Clinical trials
For many people with blood cancers or blood disorders, treatment through clinical trials provides hope and a potential cure. But they’re not always easy to find or understand. We can help you or your loved one find and join clinical trials.