We are dedicated to helping you get the support and information you need to learn about your disease and treatment options, prepare for transplant and thrive after transplant. The information and resources here will help you navigate your transplant journey.
Patient Resource Packet
We’ve created an easy-to-use packet with information for patients and their families, including:
What is Sickle Cell Disease?
Free resources for sickle cell warriors
Sickle Cell Disease and Transplant
How your friends and family could be the cure for sickle cell warriors
Not sure where to go with questions about your transplant journey or who to ask? We're here to guide you and your loved ones from diagnosis, through recovery. We'll listen and help you find answers. All our programs and resources are free.
Our Peer Connect program can connect you with a trained volunteer who’s been there. No matter where you are in the transplant process, past recipients and caregivers like you are available to talk by phone or email, to listen and share tips based on their own experience.
Individual counseling is an opportunity for warriors and their caregivers to get support during difficult times no matter where you are in the treatment process. It involves developing a two-way professional relationship between a licensed counselor and you. The counselor can help you to identify and resolve personal, social and emotional problems related to illness and BMT. The counselor can also help you improve your coping skills and quality of life.
The Financial Assistance Program is designed to help warriors overcome financial barriers to transplant. Be The Match offers grants to help qualified patients cover costs pre and post-transplant including, but not limited to: family typing, dental work, housing, food, gas and copays. Our patient navigators can help you understand if you qualify.
For many people with blood cancers or blood disorders, treatment through clinical trials provides hope and a potential cure. But they’re not always easy to find or understand. We can help you or your loved one find and join clinical trials.
Advocacy is critically important to protect access and expand coverage for patients needing a life-saving bone marrow transplant. The Government Affairs Team is dedicated to advancing our mission through legislative and policy action. We advocate to maintain and improve patient access to care. We cannot do this alone. We need your help and by joining our mission as an advocate, together, we can save lives.
Sickle Cell Advocacy Organizations
Be The Match is proud to partner with these organizations who support patients with SCD.
My 3 Sicklers
MTS Sickle Cell Foundation aims to increase the public’s awareness of sickle cell anemia. The organization will support awareness, education and research pertaining to sickle cell anemia as well as provide support to families affected by this life-threatening disease regardless of gender, creed or ethnicity.
The Sickle Cell Transplant Advocacy & Research Alliance (STAR) is a nonprofit founded by a group of pediatric hematology doctors. It is the only large sickle cell disease organization with a focus solely on research to cure SCD. STAR provides both critical funding as well as an organized collaborative network for this important research.
Sickle Cell Foundation of Minnesota
Sickle Cell Foundation of Minnesota's mission is to improve the quality of life for individuals and communities affected by sickle cell disease and sickle cell trait through education, advocacy, community empowerment, and equitable access to knowledgeable and compassionate care.
Sickle Cell Disease Association of Illinois’ (SCDAI) primary mission is to enhance and increase the quality of life of individuals with sickle cell disease and their families. To effectively achieve this goal, SCDAI acts as an advocate for improved access to healthcare and services for sickle cell patients by educating and informing the community through outreach programs.