Build Awareness. Empower Patients. Grow the Registry. Save Lives. 

 

Episode 3: The future of sickle cell disease

We’ll cover transplant and gene therapy with Staci Arnold, MD and a certified genetic counselor from Be The Match. Hear about our policy efforts for sickle cell disease, meet sickle cell warrior Dakhiyon, see how Nia Franklin, former Miss America is advocating for sickle cell patients and watch a live swab event!
Join us right here on September 24 at noon CST/1:00 p.m. EST.

Episode 1: What is sickle cell disease?

We chat about sickle cell disease basics with pediatric hematologist Staci Arnold, MD, hear sickle cell warrior Genesis’ story and learned about the barriers and disparities that sickle cell warriors face from the Health Equity manager at Be The Match.

Episode 2: Living with sickle cell disease'?

We chat with a Be The Match Patient Navigator and Social Worker and heard from the founder of MTS Sickle Cell Foundation.

Sickle Cell Connect is a three-part digital series aimed at exploring what sickle cell disease is, resources for patients with sickle cell disease and the future of the disease. This series has been created by Be The Match® to build awareness of sickle cell disease, empower patients, grow the Be The Match Registry® and to save lives. You’ll hear from nationally known sickle cell disease physicians. Listen to other warriors who have sickle cell disease. Get answers to your sickle cell disease questions. Know that you’re not alone in this journey. 

 
 
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Additional Events

Saturday, September 19

Our partner, Sickle Cell Transplant Advocacy & Research Alliance (STAR) is hosting a virtual 5K on World Marrow Donor Day! Click here to sign up and run to raise funds for sickle cell treatment research.

Wednesday, September 23

Tune in at 5:00 p.m. CST/6:00 p.m. EST to our Sickle Cell Policy Forum and hear from an esteemed panel of sickle cell community members, medical providers and Georgia State Representatives! They will be discussing policy and health care access barriers for sickle cell patients and ideas and solutions to how to improve patient access to care. Register here!

 
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Meet our Sickle Cell Warriors

Genesis

 A warrior through and through, Genesis shares what it’s like living with sickle cell disease. 

Dakhiyon

A young sickle cell warrior’s mother shares her story of finding new ways to help her son. 

Ruby

A toddler warrior’s journey with sickle cell and her hope for finding a match.

You could be the cure for these sickle cell warrior's. 

 

Social Connect

Be sure use the hashtags #sicklecellconnect, #sicklecellawarenessmonth and tag @BeTheMatch in your posts throughout Sickle Cell Awareness Month

 

About Be The Match 

For people with life-threatening blood cancers—like leukemia and lymphoma—or other diseases, a cure exists. Be The Match connects patients with their donor match for a life-saving marrow or umbilical cord blood transplant. People can contribute to the cure as a member of the Be The Match Registry®, financial contributor or volunteer. Be The Match provides patients and their families one-on-one support, education, and guidance before, during and after transplant. ​ Be The Match is operated by the National Marrow Donor Program® (NMDP), a nonprofit organization that matches patients with donors, educates health care professionals and conducts research through its research program, CIBMTR® (Center for International Blood and Marrow Transplant Research®), so more lives can be saved. To learn more about the cure, visit BeTheMatch.org or call 1-(800)-MARROW-2.

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